It's been a really long time since we updated the blog, and so much has happened since Jada got her band. Two weeks ago Alberto & Jada got the opportunity to fly to Dallas out of Monroe for free through a program called Pilots For Patients. We signed up for this program a couple of weeks in advance, and they worked so hard finding a pilot for us to take them to Dallas and back on the same day. Around 5:15 in the evening, the day before her appointment, Alberto got a call to tell us there were 2 pilots who volunteered to take them to Dallas. Needless to say, we were in awe of God's power and faithfulness! We had been praying for this, and God answered our prayers! Here are a couple of pictures of that morning...
They flew out at 7am, the appointment was at 10:00am, left Dallas around noon, and returned to Monroe around 2pm. The pilots were awesome, and Jada reached out for them to hold her when they got out of the plane that afternoon. Jada had a great first flight and slept most of the time. After we watched them take off, Lauren and I went to McDonald's for breakfast before work and school :). The next flight is this Tuesday, 9/30/ They will be flying out around 7:30 a.m. with the same pilots. Please keep them in your prayers. Jada's head is reshaping quickly and this is great news. She is also trying to walk a lot more now.
Well, it's been two weeks since we posted the last blog. We took another trip to Dallas today and Jada got her DocBand. It was a long trip but we had fun and Jada seems to not even notice her DocBand. She had fun when the OT put the band on for the first time. Right after her first appointment today, something really neat happened. We went to eat at KFC and a Dallas Police Officer walked in. He smiled and waived at Jada and then walked back out the door. He then returned inside with a big smile on his face and handed Jada a nice little white teddy bear. God is so good, he even cares about the smallest things that we don't think he is concerned with. Alberto is going to be taking the next few trips by himself with Jada so keep them in your prayers that they will have fun and safe trips. The next trip is next Tuesday, 9/2/08.
Today is the first day of the journey. For those of you who do not know, Jada has begun a crazy, exciting, scary, and busy journey. Today was her first appointment at Cranial Technologies of Dallas, TX, where she was fitted for a DOC (short for Dynamic Orthotic Cranioplasty) Band. She has positional plagiocephaly (asymmetrical head shape), which is very common these days. Her plagiocephaly was caused by torticollis (tightness of neck muscles), that caused Jada to prefer looking to the right side more than the left. Because of this, she always slept on her back with her head turned slightly to the right side (her comfortable spot). Jada developed a "flat spot" in the back right side of her head. Over time, it's only gotten worse, causing some facial asymmetry. We will go back to Dallas in 2 weeks to have her band put on, and we will return for re-fitting appointments every 2 weeks. Jada will have her band for approximately 3-4 months, and at that time we will determine whether there is a need for a second band or whether she no longer needs a band.
In all this craziness, we are staying positive, knowing that this is the best thing for her. When faced with the decision of whether or not to pursue this option, Alberto and I knew without a doubt that we needed to do this for our sweet girl. We are excited about the future outcome!
This is our first blog, so be patient with us. We'll try to keep new pictures posted as often as possible. If you're interested, visit the website at cranialtech.com for more info.